sebastian
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Post by sebastian on Jun 23, 2015 21:22:54 GMT -5
Does anybody have experience with this one? I'm very wary of all medications at this point but i've been told this one isn't as harsh as most of the immunosuppressive treatments used. I'm unsure of whether it has any negative effect on immune regulation which might undermine my AIP efforts as well as the remyelination process which requires normal macrophage function. I'll be going to my first appointment for a specialists opinion soon and given my history of having doctors try to shove unnecessary meds down my throat I'm trying to arm myself with whatever anecdotal experience and research I can ahead of time as I'm pretty sure this is going to be the first line of treatment. Any information would be great
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space
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Post by space on Jun 28, 2015 15:08:12 GMT -5
hi sebastian
i came in here as i thought this might be about IV Glutathione which sarah received to help with her thyroid...my issue ...and i'm looking to explore how to obtain this in the UK.
MAY I ASK YOUR DIAGNOSIS ''''oops sorry shouting!! its just that i would really steer away from pharma drugs....worried about you taking them...but might glutathione help you instead?
love space xx
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sebastian
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Post by sebastian on Jul 1, 2015 11:44:25 GMT -5
Hey Space. I haven't gotten an official diagnosis yet but I tested positive for antigangliosides so it's likely a Demyelinating neuropathy (ie guillaine-barre/CIDP). I'm weary of pharma drugs too but this one is literally just concentrated antibodies but I don't know the ins and outs. Haven't looked heavily into glutathione but I might
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