|
|
Post by momofangels on May 18, 2014 8:20:18 GMT -5
My son had his 13 yr physical in feb and he hadn't grown in 18months in either height or weight. They ran a battery of tests including celiac two celiac blood tests one of which came out abnormal. So we had an endoscopy and that came out negative, I need to call the doctor and find out the marsh rating for it. I started my husband paleo-ish back in Dec and after my sons blood test we had decided to take the whole family paleo-ish. We had started cutting back on our gluten but still kept it in our diets until after my sons endoscopy. After reading you are supposed to eat equivalent of 4 slices of bread a day for 2-3 months before the test and some days we ended up not having any gluten, but not on purpose. My son would eat flour tortillas and cereal and some bread. We never ate 4 pieces of bread even before we had decided to go gluten free. Did I screw up his endoscopy by cutting back on our gluten? We had only started about a month before the endoscopy so if there was damage it wouldn't have been healed even with just cutting gluten back would it?
|
|
|
|
Post by localkaty on May 18, 2014 11:20:04 GMT -5
The tests for celiac disease are really, really screwy. They highly specific, easy to misread, and easy to do incorrectly. Many specialists are now recommending that people who have already started eliminating gluten just continue avoiding it, rather than doing a gluten challenge for a diagnosis. There's no treatment for celiac other than strictly avoiding gluten, so having the diagnosis doesn't really bring any benefit of its own. If you want to try repeating the test, your son would have to do the complete gluten challenge over again... but he could also just stop eating gluten entirely and see if his health improves, since that's the end goal anyway.  |
|
|
|
Post by momofangels on May 18, 2014 21:18:04 GMT -5
I am not sure what you mean by gluten challenge? He had two celiac blood tests, both different, one of which was positive. Then they did an endoscope which they took biopsies and said it would have a marsh rating and that was the only way to diagnose celiac. We received a call that the test was negative. So I am confused.
|
|
|
|
Post by localkaty on May 19, 2014 7:31:44 GMT -5
Sorry! "Gluten challenge" is the period of time before the tests when the person being tested has to eat a particular quantity of gluten every day. If you want your son to be re-tested accurately, he would have to do that.
|
|
|
|
Post by kristiemarie on May 25, 2014 22:22:43 GMT -5
I think you are probably doing the right thing by going paleo and just avoiding gluten. I would just see how your son does without gluten and then go from there. If he starts to get better and grow then you know that gluten was the problem. I wouldn't worry so much about the diagnosis for now. The tests aren't always accurate. A negative diagnosis doesn't mean gluten is ok for him. If you take him off gluten completely, you should definitely update us and let us know how he is doing!
Sent from my iPhone using Tapatalk
|
|
