Post by rheanna on Apr 18, 2014 13:59:19 GMT -5
I took my daughter in to have the saliva test for gluten sensitivity and celiac after my test came back positive for gluten sensitivity. We did the Cyrex lava Array 1
Her results came back
Secretory IgA 5.02
Gliadin IgA+IgM > 3.40
Transglutaminase IgA+IgM >3.10
The doctor (a functional medicine doctor) said these are some of the highest test results that he's seen. He called the lab to verify that they were correct. He said it's most likely autoimmune and to follow up with a gastroenterologist. I have a call into one to schedule and appointment.
I'm having a hard time getting my ex husband on board with this. He doesn't trust the test and won't go with me to any appointment. Do these tests come back false negetive? I doubt it's false. I have gluten sensitivity and haven't tested further for celiac but I have removed gluten from my diet and I have been doing a strict paleo diet for a month and half and feel much better. I feel her gluten free at home and her school is fine with the change, it's just her dad that will be the struggle.
We went to her normal doctor with the results because I was afraid her dad would say the functional medicine doctor was unreliable. Her normal doctor knew next to nothing about Celiac but he did give us a referral to the children's hospital in Portland and we are waiting on them to call the schedule an appointment.
Any suggestions or advice is great! I'd rather avoid an endoscopy but I'm wondering if it will be better to have for her medical records.
ETA: my daughter will be 6 next month. She is generally healthy, never had any growth problems. Her symptoms are terrible ezcema on her legs, stomach aches, bad teeth (3 cavities so far and we brush well) and slight behavioral issues. She's not ADD or ADHD but she is a little spacy, kind of in her own world. In activity classes she has a hard time concentrating on the activity and is more interested in goofing off with the other kids. She does great in school but her teacher says she does have a different way of learning than the other kids and her teacher has learned how teach her for her learning style.
At home, I can feed her paleo and she loves it but she goes to her dad's 3 days a week and it's a SAD. At school currently, she is on a SAD but they are ready to switch to gluten free as soon as I tell them to.
Her results came back
Secretory IgA 5.02
Gliadin IgA+IgM > 3.40
Transglutaminase IgA+IgM >3.10
The doctor (a functional medicine doctor) said these are some of the highest test results that he's seen. He called the lab to verify that they were correct. He said it's most likely autoimmune and to follow up with a gastroenterologist. I have a call into one to schedule and appointment.
I'm having a hard time getting my ex husband on board with this. He doesn't trust the test and won't go with me to any appointment. Do these tests come back false negetive? I doubt it's false. I have gluten sensitivity and haven't tested further for celiac but I have removed gluten from my diet and I have been doing a strict paleo diet for a month and half and feel much better. I feel her gluten free at home and her school is fine with the change, it's just her dad that will be the struggle.
We went to her normal doctor with the results because I was afraid her dad would say the functional medicine doctor was unreliable. Her normal doctor knew next to nothing about Celiac but he did give us a referral to the children's hospital in Portland and we are waiting on them to call the schedule an appointment.
Any suggestions or advice is great! I'd rather avoid an endoscopy but I'm wondering if it will be better to have for her medical records.
ETA: my daughter will be 6 next month. She is generally healthy, never had any growth problems. Her symptoms are terrible ezcema on her legs, stomach aches, bad teeth (3 cavities so far and we brush well) and slight behavioral issues. She's not ADD or ADHD but she is a little spacy, kind of in her own world. In activity classes she has a hard time concentrating on the activity and is more interested in goofing off with the other kids. She does great in school but her teacher says she does have a different way of learning than the other kids and her teacher has learned how teach her for her learning style.
At home, I can feed her paleo and she loves it but she goes to her dad's 3 days a week and it's a SAD. At school currently, she is on a SAD but they are ready to switch to gluten free as soon as I tell them to.
My daughter is open to the idea of not eating gluten but at her dad's she's still given foods with gluten and I think it's just hard for a 5 year old to pass up sometimes. For now, she needs to be eating some so her tests can be accurate.