petal
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Post by petal on Jan 21, 2015 7:30:23 GMT -5
Just wondered if anyone else out there has this, and what your experiences on AIP are?
I seem to have had PsA for years, but finally got diagnosed 3 months ago and have been AIP for about 6 weeks or so. There are still gluten, dairy and nightshades in the house, so I can't say there's no cross-contamination, sadly.
I didn't get on well with cortisone or sulphur-based medication so am currently taking nothing at all (and ignoring a prescription for methotrexate). I'll be seeing an alternative medicine practitioner next week, who might be able to help with possible/probable micronutrient deficiencies.
My psoriasis (which has never been bad, and I never even went to the Dr about) has been very slightly better on AIP, but not much of a difference; my guts feel A LOT happier, my joints (various individual ones in my hands, feet, shoulder, back) are not much different yet.
Because PsA is sero-negative, I'm not expecting any changes in my bloodwork (done today) compared with 3 months ago.
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Post by Erin on Jan 21, 2015 23:50:43 GMT -5
Hi there! I have psoriatic arthritis, I suspect I've had it for at least a decade but received a diagnosis last summer. A premature/failed reintro to nuts was actually what prompted me to seek a rheumatologist and in turn get diagnosed. I had already been strict AIP for about 6 months before I tried any reintroduction {although I made the mistake of trying to reintroduce the foods I missed most: coffee, chocolate, and nuts lol!}. And while it was a bummer that my body protested nuts, I came out of that experience with a diagnosis and for sure trigger food. My rheumy said I was in the "lower tier" of severity, which I've continued to manage on my own now without the need of medication. I feel a difference on the days I slack with nutrient-dense/anti-inflammatory foods. I use turmeric and ginger in a lot of my cooking and drink bone broth daily in addition to cooking with broth. Like you, I've never been to a dermatologist for psoriasis. But I've had it since I was five. All that remains is scalp psoriasis - I've had no new flares. I just can't seem to keep my scalp completely clear. :/ I am finally reintroducing foods again and so far I'm doing good with those foods. That's my experience with psoriatic arthritis and the autoimmune protocol so far
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petal
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Post by petal on Jan 22, 2015 8:33:49 GMT -5
Thanks for sharing, Erin! I think I might have stumbled over your blog recently while looking for recipes?
I've been a bit cautious with turmeric since reading Sarah's book, but think I might add it back in again and see what happens. I find the dried stuff quite bitter, but am fortunate to be able to get it fresh & organic, and like it in green smoothies and stir-fries. Ginger I eat at least once a day.
I'm feeling really sore today, despite plenty of bone broth, offal stew, green veggies. Maybe it's stress/not enough sleep rather than diet this time...
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Post by Erin on Jan 23, 2015 19:08:02 GMT -5
Yes, turmeric is one to be mindful of - every body is different. Some do well with it and some do not. I prefer fresh, but haven't found it locally since we moved last summer. :/ Diet is only a piece to the puzzle. I slept horribly last night {daughter is sick with cold/croup so up throughout the night with her and had early start to the day because my son wouldn't go back to sleep LOL!} and am feeling pretty achy myself. Perhaps an early bedtime is in order? P.S. I'm tickled you stumbled across my little corner of the blogosphere!
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petal
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Post by petal on Jan 26, 2015 8:09:24 GMT -5
Well, that was an interesting discussion. The Dr has offered me MORA therapy (something to do with bioresonance), and has taken some blood prior to some kind of mitochondrial therapy. I'm liking the sounds of this a whole lot more than MTX! Here's hoping it can get this inflammation under control; I'm very curious to find out exactly what he says I'm intolerant of based on these tests. Will keep on AIPing in the meatime and hope that his information will help me to personalise it effectively.
And I'm definitely in need of earlier bedtimes. Sarah's post on paleomom today (about her own honesty etc) really rung true with me in terms of stress. I have to get better at looking after myself and not just everyone else in the family!
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gabby
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Post by gabby on Mar 5, 2015 6:37:44 GMT -5
I have positive Rh factor so am diagnosed with RA and Psoriasis separately, but my symptoms present as classic PsA, tendon pain as well as joint pain, Achilles so swollen I have huge bone spurs, eyes very sore and red at least a couple of days a week.
I had pretty good digestion before they put me on methotrexate, now it has been 2 years of IBS symptoms, diarrhea one day followed by constipation for 3 days followed by diarrhea again. I started AIP only 5 weeks ago, (been nightshade free for 2 years which resulted in huge reduction in pain but no still plenty of swelling) since starting AIP I am just plain old constipated the whole time, but huge reduction in swelling, went to get blood tests today will post about results soon. I know everyone is different and mtx might not strip away the last vestiges of normal digestion like it did to me, but I am so sad I ever tried it, I really hope you can find an answer in diet.
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petal
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Post by petal on Mar 18, 2015 14:13:40 GMT -5
((Gabby)) I'm so sorry MTX has had that effect on you - what a rollercoaster!
I've had some test results back, will post an update soon (OH has just cooked me dinner :-))
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petal
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Post by petal on Mar 19, 2015 6:49:32 GMT -5
Well, following a whole load of tests, I apparently have a long list of intolerances, ranging from big obvious ones like wheat (but also millet), dairy and egg white, to a few random ones like red cabbage and broccoli. According to the doc, MORA therapy will get rid of these. I'm a bit sceptical that they'll all go, to be honest, but it's not like anyone's going to force me to eat bread after the treatment, is it?!?! ;-)
He also did blood and stool samples. All my major vitamins and minerals including things like Q10 were in the healthy range (I thank a few months of AIP, because I hadn't taken any supplements for nearly 3 months at the time of testing), except my vit D levels were a bit low (no surprise for Europe in February). He also found zonulin in my blood, but no evidence that there was leakage in the other direction, so that wasn't as bad as it could have been. He's now recommended high dose vit D oil (with A & K2), and specific multi-vitamin and extremely high doses over over 40 strains of healthy gut bacteria. He wants to review it in 3 and then 6 months, so I'll let you know how I get on.
At the moment I'm sore, and am really, really hoping that it's not an intolerance to something in one of the supplements. Most are with rice starch etc but one has a small amount of soy in it. I'm going to give it another week before I go back and ask again.
But the sun is out and this is our first spring with an allotment, so it looks like I'll be getting plenty of fresh air and exercise (and some very fresh veg if the slugs don't eat it first!).
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petal
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Post by petal on Oct 18, 2015 4:50:09 GMT -5
Just thought I'd post an update on this in case anyone's looking. After 2 rounds of MORA therapy (each over several weeks), I think I can say fairly confidently that, while I feel it was good at identifying intolerances (mostly stuff I'm not eating on AIP anyway), I don't think that it's had any appreciable effect on removing the intolerances. To be fair, the Dr did say up front that although he finds it to be around 95% effective, the rate is lower than that for people with psoriasis in his experience.
I'm still taking the vitamins and probiotics, and will be going back for another review next month, where I'd like to talk to him about incorporating as much as possible into diet rather than supplements. I have no idea how open he'll be to that suggestion, whether he'll ne to repeat any tests or what. I suspect, though, that I'll always need to keep supplementing vitamin D. My concern is that it's bundled with vit A - I wouldn't like to be overdosing on A, as I do eat offal every day. Hmmm.
In terms of symptoms, I feel okay, although I still always have pain. I'm concerned that the rheumatologist didn't seem to think that the pain in my shoulder, knees, hips and back were related to the PsA and am considering a trip to the orthopaedic Dr, but I'm not really sure what I'd be expecting him to do.
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