jw
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Post by jw on May 12, 2014 9:14:37 GMT -5
A new family moved into our cul-de-sac and within the first hour talking with the mom she talked about Whole 30! How the conversation came up, I cannot remember. But Yay for having someone that gets why I eat the way I do and why I feed my kids the way I do. I cannot contain my excitement!!!! It's nice when you find someone who can relate to a healthier way of eating. When I started AIP on January 1st, I was excited to take my health into my own hands. After awhile, I did start to feel moody/depressed/annoyed about it because I felt like I wasn't living a "normal" life anymore. I longed for the days (before my Celiac diagnosis) in which I didn't think about what I ate..I just ate it! I wasn't an unhealthy eater either which is what bugged me the most. Anyway, those feelings did pass and I feel better than ever. We all have our good days and bad days with whatever autoimmune condition we have and with our emotional health as well but we just have to stick with it. AIP isn't a quick fix and it's definitely a journey! Congratulations on starting yours!  By the way...we do have a Celiac board as well! Thank you! I do check out the celiac board regularly . I completely feel your sentiments about having days of being moody/depressed/annoyed. I am excited to know that for you those feelings have passed. I cannot wait for them to pass for me!!! |
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jw
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Post by jw on Jun 5, 2014 11:15:14 GMT -5
I had my one-month check up since going on medicine for chrons and was happy to be able to tell the doctor that I have been feeling really well. I was also encouraged by the fact that he still supports my plan to use this drug only to heal and see if ultimately I can be drug free. I am also almost finished with steroids and because my dose is so low, my ability to sleep has returned!! I forgot how wonderful Sleeping 8 plus hours a night is!
Even though all seems well with me and my appointment was good, I am anxious about two things - the results of my celiac panel and all my upcoming work trips. I am anxious about the celiac panel because I am afraid I am being exposed to gluten because my house is not gluten free. And because I don't have the typical responses to gluten exposure, I really don't know if I am being exposed or not. Then, I am anxious about my upcoming work trips because I have not gotten used to talking to restaurants about my dietary needs. I do talk to them, don't get me wrong, but I dread it, turn red, and get nervous each time. And no one every makes me feel bad; it's just my insecurities about having to have something prepare specially for me.
But if talking to restaurants and banquet directors is the worst thing for me and my diseases right now, I am doing pretty darn good!!!'
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jw
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Post by jw on Jul 4, 2014 19:12:12 GMT -5
I am scared. I had a reaction to the most recent medication I took for two months and my doc took me off them. Over the last three weeks I have progressively gotten worse with my crohns.. The last two days reminded me of my worst days. I go to the doc Monday. A friend asked me why I am scared and I struggled to explain why. I trust my doc. I trust my ability to use diet to heal me the best I can. Maybe I think my body is failing me even though I am treating it like a temple. Maybe I am scared because I fear that I won't reach remission and will continually struggle to heal....which to me means I am continually damaging my insides and increasing my risk for colon cancer. Yikes! I am scared that my appointment Monday won't give me a path to follow but only more uncertainty. I get that I can't get answers in my time , but I am scared. Just scared.
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jw
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Post by jw on Jul 8, 2014 2:52:35 GMT -5
My appointment went well. I am re challenging the medication and sticking with strict aip. If I am not better in two weeks it's back to steroids. Yuck! Although I don't feel as scared because there is a plan, I feel like I am treading water.
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jw
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Post by jw on Jul 24, 2014 11:57:34 GMT -5
I am leaving town and staying in a hunting lodge with 40 plus people-my husband's family. This reunion is an event I look forward to!! This year, I still look forward to being with the people, but I am stressed about the food. We will be in the middle of nowhere, so I plan to pack most of my food. But it's for 10 days! And we are a family of five plus a dog traveling in the car. My food can't take up too much space. Then I think about having to explain myself to those questioning my eating. Ugh! I hate that part. They are all great people and will ultimately be supportive, but I am tired of justifying my decision the take this alternative approach to being healthy and trying to heal. I guess the best I can do is smile, nod my head, and just keep doing the healthy stuff I am doing!!!! Oh, and remember to have fun, because this reunion is about the people not the food....but I am really going to miss the amazing family-cooked foods of tradition!!! It's about the people, not the food. It's about the people, not the food.....convinced!? Ha.
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jw
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Post by jw on Nov 17, 2014 23:01:58 GMT -5
I am killing time in the bathroom waiting for my colonoscopy prep to flush out of me, and I can't help but reminisce about these past 10 months. It's been a long, trying, and rewarding journey. Yet, I am now hoping to find answers with the speciality clinics I am at. I have accepted that healing is a long process. And I anticipate facing opposition to my beliefs on the role diet has in my healing. Over four days of appointments and tests, the plan is to figure out ....I am not sure?! Yes, I have Crohn's disease. Yes, I have celiac disease. Yes, neither disease is calmed, just put on pause for a short time. Then on play. Then on pause. They've been on play lately and it's not been good. But, really, 10 months ago, it was way worse. But eh, maybe I'll learn many new things!!
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bwb
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Post by bwb on Jan 27, 2015 16:44:25 GMT -5
I am killing time in the bathroom waiting for my colonoscopy prep to flush out of me, and I can't help but reminisce about these past 10 months. It's been a long, trying, and rewarding journey. Yet, I am now hoping to find answers with the speciality clinics I am at. I have accepted that healing is a long process. And I anticipate facing opposition to my beliefs on the role diet has in my healing. Over four days of appointments and tests, the plan is to figure out ....I am not sure?! Yes, I have Crohn's disease. Yes, I have celiac disease. Yes, neither disease is calmed, just put on pause for a short time. Then on play. Then on pause. They've been on play lately and it's not been good. But, really, 10 months ago, it was way worse. But eh, maybe I'll learn many new things!! How is it going the last few months? |
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jw
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Post by jw on Jan 30, 2015 8:02:58 GMT -5
The testing resulted in a new treatment plan. The new plan helped. I felt strong, healthy, and like I was healing. Then, as has happened before, the side effects of the drugs required me to go off them. No drugs meant the inflammation returned. Using AIP helps me still go to work, be a mom, wife, and friend. I think without AIP, I would spend my days in bed or in the bathroom. But I am not getting into remission. Doc has another new plan. Prayers that it works.
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bwb
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Post by bwb on Jan 31, 2015 10:43:32 GMT -5
The testing resulted in a new treatment plan. The new plan helped. I felt strong, healthy, and like I was healing. Then, as has happened before, the side effects of the drugs required me to go off them. No drugs meant the inflammation returned. Using AIP helps me still go to work, be a mom, wife, and friend. I think without AIP, I would spend my days in bed or in the bathroom. But I am not getting into remission. Doc has another new plan. Prayers that it works. Gotcha, can you share a little more on what that new plan is? I was recently diagnosed with crohn's and just trying to understand what its like for other people, as I haven't had many symptoms yet. I've been doing Paleo AIP for 6 weeks, and taking Pentasa at half the dosage the doctor prescribed for the next 6 months until I get past some stress. Then I plan to head off the drugs, as my gut should have a lot of healing time between now and then too I am hoping. Thanks, Ben |
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jw
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Post by jw on Feb 13, 2015 14:20:31 GMT -5
The testing resulted in a new treatment plan. The new plan helped. I felt strong, healthy, and like I was healing. Then, as has happened before, the side effects of the drugs required me to go off them. No drugs meant the inflammation returned. Using AIP helps me still go to work, be a mom, wife, and friend. I think without AIP, I would spend my days in bed or in the bathroom. But I am not getting into remission. Doc has another new plan. Prayers that it works. Gotcha, can you share a little more on what that new plan is? I was recently diagnosed with crohn's and just trying to understand what its like for other people, as I haven't had many symptoms yet. I've been doing Paleo AIP for 6 weeks, and taking Pentasa at half the dosage the doctor prescribed for the next 6 months until I get past some stress. Then I plan to head off the drugs, as my gut should have a lot of healing time between now and then too I am hoping. Thanks, Ben |
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jw
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Post by jw on Feb 13, 2015 14:26:12 GMT -5
Gotcha, can you share a little more on what that new plan is? I was recently diagnosed with crohn's and just trying to understand what its like for other people, as I haven't had many symptoms yet. I've been doing Paleo AIP for 6 weeks, and taking Pentasa at half the dosage the doctor prescribed for the next 6 months until I get past some stress. Then I plan to head off the drugs, as my gut should have a lot of healing time between now and then too I am hoping. Thanks, Ben Hi Ben. Crohns for me has been failed attempts to get into remission. I've tried Pentasa, steroids, entocort, uceris, and imuran. Although each if the drugs worked to help lessen the crohns flare, the side effects concerned the doctor. Right now the plan is to rechallenge Imuran. I've done it twice before without success but we are trying again. And I am on entocort. And I follow AIP. Really, AIP is what has helped me the most without any side effects. I know I am fortunate to be where I am in my recovery --no surgeries yet. But I want to get into remission and keep from ever having surgery. Good luck to you!! |
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jw
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Post by jw on Jun 7, 2015 8:51:32 GMT -5
Many months have passed since my last post, but it feels like only weeks. I am still following AIP with reintroductions and I still believe in it's beneficial role in my healing journey. I find that AIP is not a "special" way of eating; it's just the new normal. It's not different or awkward with my family or friends. When I travel for work, AIP travels with me just fine. Ha! Now if I could get myself healed. My mind and body are not in agreement. My mind, heart, and soul knows I will reach remission. My body, on the other hand, speaks differently. Argh!! Thank God for my support system, my community, my medical providers, etc. My mind, heart, and soul will win!!!
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By the way...we do have a Celiac board as well!
